Let’s Talk about Lyme

Recently I had the pleasure of being interviewed by local cable TV host John Ricciutti of Radnor Studio 21. We had an excellent discussion about Lyme Disease, and I really appreciated the opportunity to talk about my journey and advocacy work. Click below to watch.

After watching it, please share it with friends and family and all those with whom you think would benefit. Most importantly, let’s keep fighting to get the word out there that Lyme disease is for real and effective diagnosis and treatment is crucial.

Day 29 of National Lyme Disease Awareness Month

National Lyme Disease Expert Dr. Richard Horowitz Sits Down with Senior Managing Editor Dr. Manny Alvarez of Health Talk

Horowitz-Dr-Manny-300x165 May. 06, 2015 – With 300,000 new cases of Lyme disease in the U.S. each year, it’s no surprise that the tick-borne illness has been a hotly debated topic among medical experts. Dr. Manny interviews Dr. Richard Horowitz, New York Times bestselling author of “Why Can’t I Get Better? Solving the Mystery of Lyme and Chronic Disease.” Click here to watch “The Lyme Disease Debate.”


Day 15: What You Need to Know

Pacific Coast ticks. Photo source: goingslo, Flickr, Creative Commons.

Pacific Coast ticks. Photo source: goingslo, Flickr, Creative Commons.

1. When hiking, try to stick to trails and avoid walking through low bushes and long grass. Avoid tick-infested areas, such as leaf litter under trees. Don’t sit on stumps or fallen logs.
2. Try to wear long pants, long sleeves, a hat and gloves. Tuck your pants into your socks.
3. Always do a body check after coming in from the outdoors.
4. Throw your clothes in the dryer as soon as you come into the house.
5. Shower immediately after throwing your clothes in the dryer.
6. When finished, do a second tick check.
7. If bitten, remove a tick as soon as possible with sharp-tipped tweezers. Gently grasp the tick near its head or mouth. Don’t squeeze or crush the tick, but pull carefully and steadily. Once you’ve removed the entire tick, apply antiseptic to the bite area.
removing tick
8. Save the tick, seal it in a plastic bag with moist cotton and send it out to Igenex to be tested.
9. Do your best to tick-proof your yard. Keep grass short. Clear brush and leaves where ticks live. Use an edger to create a barren zone around your yard. If you must have a woodpile, keep it in a sunny area.
10. Flulike symptoms in the summer are typically not the flu. If you are experiencing them, get to the doctor immediately to make sure it is not Lyme disease.
11. If you suspect you have Lyme disease, ask your to diagnose you clinically and not to rely on the presence or absence of a bulls-eye rash or positive Elisa and Western Blot tests. These tests are too insensitive to be the deciding factor and thus a negative test does not ensure one does not have Lyme disease.
12. If he/she does a test, ask him to do a Western Blot test from the California-based company called Igenex rather than the typical mardx marblot Western Blot.
Read the following article to see what bug sprays Consumer Reports recommends. The Best Bug Sprays

Day 6: Did you Know?

tick3 meals
Ticks generally have only three meals in their entire lifetime. The first meal prompts the metamorphosis from larva to nymph and the second from nymph to adult. The third meal prepares the female tick for laying her eggs.
Spreen, K. (2014-05-06). Compendium of Tick-Borne Disease: A Thousand Pearls (Kindle Locations 849-850). Pocopson Publishing, LLC. Kindle Edition.

Did You Know? Day 4


Called the Great Masquerader, Lyme disease and its co-infections can mimic over 300 other diseases, including ALS, Alzheimer’s, Anxiety and other psychological disorders, Candida, Cardiac diseases, Chronic Fatigue (ME/CFS), Fibromyalgia, Gastrointestinal disorders, Lou Gehrig’s disease, Lupus, and MS.

Given that Lyme disease tests are unreliable oftentimes coming back negative, physicians rule it out and continue to explore other diseases. Thus, having a doctor who knows how to diagnose this disease clinically and who understands that Lyme disease tests are highly insensitive is crucial.

Under Our Skin, Lyme Disease Organization