Month Five…Can it Be?

Receiving my Month 5 Protocol

Betsy and I drove down to Washington, DC, on Tuesday, April 1, to see Dr. Jemsek for my 5 month appointment. He told us that he was happy with my improvement thus far, and that I would now be entering the hardest two months of my protocol.

Dr. Jemsek writing out my plan

Dr. Jemsek writing out my plan

“Thus far, we’ve cleared out the periphery but now we have the biofilm to blast, which is the deepest layer. The disease likes to infect the bottom of the brain, and we need to get it out of there with some heavy hitters. We will be using IV Merrem as well as a new one called IV Tygacil to reach those layers.”
The nurse mixing up Tygacil

The nurse mixing up my Tygacil test dose

Tygacil can make a patient nauseous so he said that I should keep ginger, Zofran or phenergen on hand.
After they ran the Tygacil in the office, I went straight back to the hotel and fell asleep for four hours. I woke up for some dinner and slept another 12 hours but I never got sick. This was my prayer, and I was grateful to God for His protection.
Month 5 will require treatment for 3 weeks in a row with a one week break at the end. The first week I will be dosing with the Merrem and Tygacil on Monday, Wednesday and Friday. I will also be taking an oral antibiotic, antimalarial and anti-fungal Monday through Friday. In addition, I will be mixing xylitol with water and taking 2 tsp a day for 8 days along with a pill called Lactoferrin. This makes a sugar alcohol mix that acts as a detergent scrubbing open the biofilm that the bacteria hide in.
On the second week, I will be running IV Merrem and Cipro twice a day Sunday through Thursday. Cipro makes me queasy, and I’ve never taken it 5 days in a row so I pray for the best. The next week I will take the anti-malarial Coartem, which gave me intense nightmares and made me feel depressed the last time I took it. But I’m thankful it will only be for 3 days.
brain-answersThis month’s protocol will be pulling the bacteria out of the brain in the most powerful way yet. Thus, the side effects could be harsh, both physically and mentally. As always, I will need to think with my head remembering that God is there with me even when my emotions try to tell me otherwise. I’ve been very blessed with a core support network and a good God so I know I will get through it yet again. There is a lot to be hopeful about!

6 thoughts on “Month Five…Can it Be?

  1. Hi Karen, I am so graitful for your story. I too am a nurse stricken with this awful bug. My story is very similiar. I went to bed and awoke on March 16, 2012 unable to feel my legs, numb from my upper abdomen and down. My story is the same, going from doctor to doctor. The first year and a half I was in and out of hospitals and rehabs. Different diagnosis from a stroke to neurosarcordosis to finally MS. I have been treated with MS meds for about a years and a half now and contlnually getting worse. I am now in a wheelchair and put to bed with a lift. About 6 or 7 months ago we ftnally convinced my Nurse Practioner to test for Lyme using the Western Blot. No surprise it was positive, Now Ive been to two Infectious Disease doctors,two neurologist, drove to New York to see an expert on Lyme. He gave me two po antibiotics, and 5 different suppliments to try for a month, A month later and a $200.00 phone consultation to be told I need IV meds. But me in PA and him in New York he cant do it. I asked the receptionest when I made the appointment if there would be ant problems. I was assured it wasnt a problem ” we have patient coming from all over” I was told. We bought a $25,000.00 w/c assessable van and headed to New York. We spent around $2000.00 for hotel, meals.suppliments. doctor fee. Now I am back to square one. Im sorry if this reply sounds like I am really stupid but the Lyme or MS really affected my brain. I wish you all the luck in the world and Ill keep you in my prayers.


  2. Karen, my thoughts and prayers are with you dear friend. Thankfully things are improving. It won’t be long till you’ll be sitting at my pool in Florida, taking in the rays with me. Believe it or not, I just flew into Philadelphia this morning. My daughter picked us at the airport and we are heading back into Jersey for Passover and Easter. I love you


  3. Thank you, Karen, for giving us this detailed update so that we can join you in fervent prayer during this month.
    I pray that you will behold God, your mighty warrior during this part of your treatment. Isaiah 42:13 The LORD will go forth like a warrior, He will arouse His zeal like a man of war. He will utter a shout, yes, He will raise a war cry. He wil prevail against His enemies.”


  4. When it gets unbearable, dark and you want to give up remember the bigger picture. Lean on Him and your support system to encourage you through another day. You’re not alone and you will get through this.


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