Let’s Talk about Lyme

Recently I had the pleasure of being interviewed by local cable TV host John Ricciutti of Radnor Studio 21. We had an excellent discussion about Lyme Disease, and I really appreciated the opportunity to talk about my journey and advocacy work. Click below to watch.

After watching it, please share it with friends and family and all those with whom you think would benefit. Most importantly, let’s keep fighting to get the word out there that Lyme disease is for real and effective diagnosis and treatment is crucial.

Statewide Lyme Disease Legislation

USThe LDA has compiled data on bills, laws, resolutions, and hearings in the various states across the United States. It includes the respective name, purpose and action that has been taken on each by the appropriate governing body. I found it to be quite interesting and informative.

To read it, click here.

A Step in the Right Direction: Passage of Lyme Bill H.R. 4701

House of RepresentativesSeptember 12, 2014: The Tick-borne Disease Research Transparency and Accountability Act of 2014-H.R. 4701 is the first standalone bill addressing Lyme disease to EVER pass the House of Representatives. Let’s thank Congressmen Chris Gibson R-New York, 19th District, who is the sponsor of this bill. And let’s thank Chris along with Sean Patrick Maloney D-New York, 18th District; and Chris Smith R-New Jersey, 4th District, who made powerful and impassioned speeches in support of this crucial legislation.

You can watch their speeches here (approx. 19 minutes). Their impassioned pleas start at the 4 minute mark. It’s worth the viewing.

This is a HUGE step forward for the Lyme disease community. Now it’s on to the Senate. A bill must be passed by both the House and Senate in identical form and then be signed by the president to become law. GOD GO BEFORE THEM and PAVE THE WAY!

 

Lyme Victory in the US House of Representatives

September 9, 2014: Hooray! Lyme Bill HR4701 passed in the House today. Next it will go before the Senate. As soon as I know more about that, I will pass along the information.

Immediate Action Needed

September 9, 2014: Please contact your congressman to encourage him to support Lyme Bill HR 4701 (the Vector-Borne Disease Research Accountability and Transparency Act) that is before the House.

Here is the internet link to email your senator.

This bill will be very beneficial for Lyme sufferers so we must join together to ensure this is passed.